Living Life To The Fullest With Ehlers Danlos Syndrome Pdf Download Or

Living Life to the Fullest with Ehlers Danlos Syndrome

Author : Pt Kevin Muldowney
Publisher : Unknown
File Size : 15,8 Mb
Release Date : 2015-07-17
Genre: Ehlers-Danlos syndrome
Pages : 400
ISBN 10 : 1478758880

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"This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.

A Multidisciplinary Approach to Managing Ehlers Danlos Type III Hypermobility Syndrome

Author : Isobel Knight
Publisher : Singing Dragon
File Size : 13,7 Mb
Release Date : 2013-03-28
Genre: Health & Fitness
Pages : 224
ISBN 10 : 9780857010551

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The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient. This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia. It explores the exercise and rehabilitation work involved in managing the condition effectively, considering a diverse range of medical treatments and complementary approaches including physiotherapy, Bowen Technique and Feldenkrais Method(R). There are contributions and insights throughout from experts in the fields of physiotherapy, rheumatology and health psychology, all of whom have extensive experience of working with complex chronic patients. The author links her own symptoms and experiences to those of other EDSIII patients and discusses how she has been able to reach a point where she can successfully manage the condition. This book will be essential reading for professionals working with EDSIII and other complex conditions including medical professionals, physiotherapists, occupational therapists, psychologists, counsellors and complementary therapists, and will be of interest to patients with EDSIII wanting to learn more about effective management of the condition.

Our Stories of Strength

Author : Kendra Neilsen Myles
Publisher : Unknown
File Size : 10,5 Mb
Release Date : 2016-10-20
Genre: Connective tissues
Pages : 214
ISBN 10 : 0997319623

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This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."

Too Flexible To Feel Good

Author : Celest Pereira
Publisher : Victory Belt Publishing
File Size : 14,8 Mb
Release Date : 2021-10-12
Genre: Health & Fitness
Pages : 240
ISBN 10 : 9781628602432

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Are you overly flexible or double-jointed? Perhaps you are the clumsy and tired person in your group of friends, often nursing an injury of some sort. If you are nodding in agreement with raised eyebrows and a knowing smirk on your face, then there is a chance you are hypermobile. Hypermobility affects a whopping 10 to 25 percent of the population (meaning it’s more common than being left-handed, standing over six feet tall, or having a third nipple), and it can cause symptoms ranging from minor discomfort to debilitating pain. Hypermobile people’s bendiness and tendency toward anxiety often lead them to yoga, where they find that they are at last praised for their physical ability and given tools to manage their hypersensitivity. However, the way yoga is taught frequently leaves this population susceptible to severe injuries, and they end up being told by medical professionals to avoid yoga. In this epic new book, fitness experts Adell Bridges and Celest Pereira redefine how to manage hypermobility, providing a practical roadmap that will enable you to harness your bendiness and feel fantastic. They reinforce the importance of stability, correct posture, and a healthy lifestyle, showing how, if managed properly, hypermobility is not debilitating, but a superpower that you can use to live an extraordinary life. Too Flexible to Feel Good teaches you how to adapt your everyday habits such as your biomechanics and your diet to support and nourish your flexible body. This book also features: Practical tips on how to hold your body for optimal results during training Tools to help build awareness of your joint position in everyday life Strategies for busting anxiety Exercises that can improve your biomechanics Diet and sleep considerations Too Flexible to Feel Good is also an invaluable resource for yoga teachers, fitness instructors, and medical professionals, helping them develop a deeper understanding of how best to help this population.

Spectrum Women

Author : Barb Cook
Publisher : Jessica Kingsley Publishers
File Size : 11,8 Mb
Release Date : 2018-08-21
Genre: Family & Relationships
Pages : 336
ISBN 10 : 9781784508067

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Barb Cook and 14 other autistic women describe life from a female autistic perspective, and present empowering, helpful and supportive insights from their personal experience for fellow autistic women. Michelle Garnett's comments validate and expand the experiences described from a clinician's perspective, and provide extensive recommendations. Autistic advocates including Liane Holliday Willey, Anita Lesko, Jeanette Purkis, Artemisia and Samantha Craft offer their personal guidance on significant issues that particularly affect women, as well as those that are more general to autism. Contributors cover issues including growing up, identity, diversity, parenting, independence and self-care amongst many others. With great contributions from exceptional women, this is a truly well-rounded collection of knowledge and sage advice for any woman with autism.

Joint Hypermobility Handbook

Author : Brad T. Tinkle
Publisher : Wiley-Blackwell
File Size : 18,9 Mb
Release Date : 2010
Genre: Ehlers-Danlos syndrome
Pages : 0
ISBN 10 : 098257715X

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As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.

Ehlers Danlos Syndrome A Multidisciplinary Approach

Author : J.W.G. Jacobs
Publisher : IOS Press
File Size : 9,6 Mb
Release Date : 2018-08-14
Genre: Medical
Pages : 370
ISBN 10 : 9781614998785

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Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.

Hypermobility Fibromyalgia and Chronic Pain E Book

Author : Alan J Hakim
Publisher : Elsevier Health Sciences
File Size : 19,7 Mb
Release Date : 2010-09-15
Genre: Medical
Pages : 336
ISBN 10 : 9780702049934

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This groundbreaking new text explains and documents the scientific basis of chronic pain in Joint Hypermobility Syndrome (JHS) and other heritable disorders of connective tissue from the physiological, epidemiological, genetic and clinical viewpoints. It asks the reader to consider the possibility of JHS, identify it clinically, understand its co-morbidities, including interdependencies with Fibromyalgia and Chronic Fatigue Syndrome, while managing the condition appropriately. Hypermobility, Fibromyalgia and Chronic Pain takes a multi-specialty and multidisciplinary approach to understanding JHS and its management, drawing together expertise from a broad group of internationally-recognized authors. The book is split into two sections. Section 1 deals with the clinical manifestations of JHS and Fibromyalgia, their epidemiology and pathophysiology. Section 2 covers clinical management. Here the reader will find chapters covering pharmacotherapeutics, psychotherapy and physical therapies that address the needs of patients from childhood to adulthood. It is hoped that Hypermobility, Fibromyalgia and Chronic Pain will advance knowledge of therapies and provoke further research while stimulating interest and encouraging debate. Comprehensively relates practical therapy to the nature of the underlying pathology Covers in one single text both the scientific and practical management aspect of Joint Hypermobility Syndrome and its allied pathologies Contributions from over 30 leading international experts Multidisciplinary approach will support all health professionals working in this field

Hypermobility Without Tears

Author : Jeannie Di Bon
Publisher : Independently Published
File Size : 13,5 Mb
Release Date : 2019-05-09
Genre: Uncategoriezed
Pages : 144
ISBN 10 : 1096534983

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Hypermobility Without Tears is a step-by-step guide to help people with hypermobility and Ehler-Danlos Syndrome (EDS) learn how to move pain-free and effortlessly. A movement therapist and hypermobility specialist with over a decade of education, research, client practice and Pilates teaching, Jeannie is an expert in the field of movement. Her own experience of hypermobile EDS, leaves her uniquely qualified to guide people with hypermobility and EDS back to movement and a 'no pain, no strain' lifestyle. Having suffered through years of misdiagnosis and pain, Jeannie truly understands the 'hypermobile body' and her book offers empathetic guidance on how to listen to the body and learn to move without pain. Hypermobility Without Tears is arranged into six sections based on Jeannie's key principles of pain-free movement for the hypermobile body: breath, relaxation, proprioception, stability, balance and posture.

Hypermobility Syndrome

Author : Rosemary Keer
Publisher : Butterworth-Heinemann
File Size : 17,9 Mb
Release Date : 2003
Genre: Medical
Pages : 176
ISBN 10 : 0750653906

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Download Hypermobility Syndrome Book in PDF and ePub

Discusses the implications of generalised joint hypermobility and helps the reader to recognise and identify when the hypermobility syndrome is present. It goes on to describe in detail the assessment and management of the syndrome from children through to adults, and it includes sections on relevant ergonomics, rehabilitation and fitness. Also included is information on where the hypermobility syndrome fits in with other connective tissue disorders.

Confessions of a Fashionista

Author : Angela Clarke
Publisher : Random House
File Size : 8,7 Mb
Release Date : 2014-11-27
Genre: Biography & Autobiography
Pages : 336
ISBN 10 : 9780753551646

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The incredibly popular Daily Mail column, 'Confessions of a Fashionista', feeds its hungry readers snippets of a life in the glittering yet deranged world of fashion. Now its anonymous author reveals both her identity and the true story of her giddyingly glamorous time in the style industry, with insider gossip on the people who populate it. Propelled by a painful end to a relationship and determined to prove her ex wrong for breaking up with her, our Fashionista lands a place on the Harrods Graduate Scheme. A complete outsider to the fashion world, she sets out on a wing and a pair of Guccis, and finds herself in a whirlwind of couture and craziness. Along the way she learns how to stay sane in a world where hairdressers have egos as big as their clients' bouffants, where dogs fly business class, and if you're eating carbs it can only be because you're pregnant. Confessions of a Fashionista is a book for anyone who's ever been an outsider, for anyone who's ever had a relationship end badly and thought they'd never find true love, and for anyone who thinks that cakes were made to be eaten, not sniffed. By turns hilarious, sad, thrilling, romantic and fun, it is the It book for fashionistas everywhere.

A Zebra Like Me

Author : Amy Maurer Jones
Publisher : CreateSpace
File Size : 10,6 Mb
Release Date : 2014-01-15
Genre: Juvenile Fiction
Pages : 298
ISBN 10 : 1494995131

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Maybelle Dawson longs for normalcy and belonging. Often misunderstood, she struggles with a rare disorder, labeling her a Medical Zebra. Maybelle's happiness and well-being threaten to slip through her fingers as she battles to take control of her life. She faces a never-ending battle on her journey to find love, courage and friendship in a world lacking acceptance. With the guidance of her guardian angel, Maybelle finds her way out of emotional and physical isolation to discover lasting love and amazing friendships. A Zebra Like Me is the story of one teenager's battle with Ehlers-Danlos Syndrome, a disorder affecting one in five thousand people.

Finding Joy with an Invisible Chronic Illness Book

Score: 4.5

From 5 Ratings

Finding Joy with an Invisible Chronic Illness

Author : Christopher Martin
Publisher : Martin Family Bookstore
File Size : 18,6 Mb
Release Date : 2021-11-14
Genre: Young Adult Nonfiction
Pages : 200
ISBN 10 : 9780990826965

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"Christopher does a brilliant job of explaining the tools for managing the social, spiritual, mental, and physical aspects of chronic illness. I loved that the book contains straightforward tips for patients, their caregivers, and loved ones. Every chapter includes useful advice." —Edith Wairimu, 5-Star Readers' Favorite Book Review Live your best life — even when your physical health crumbles. Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references. Ultimately, Finding Joy is an A-to-Z guide that critiques the literature and empowers the reader with: Positive psychology techniques. These range from self-compassion, positive reappraisal, positive self-talk, and pacing to positive thoughts, emotions, and behaviors such as optimism, humor, and volunteer work. Stress-reduction methods. These include tools such as mindfulness, breathing exercises, simplification, and (therapeutic) journaling. Proven therapies. Examples include cognitive behavior therapy (CBT), dialectical behavior therapy (DBT), and acceptance and commitment therapy (ACT). Effective communication strategies and their impact on relationships and even the ability to access quality healthcare. Numerous tips to both access and optimize your your experience with high quality healthcare. Important considerations for loved ones of the chronically ill, so they too can know how to best support their loved one and take care of themselves in the process. Lastly, consider using the workbook by Oak Tree Reading on Amazon to enhance your r

EDS Survival Guide

Author : Sonya Zappone
Publisher : Unknown
File Size : 12,7 Mb
Release Date : 2021-11-04
Genre: Uncategoriezed
Pages : 130
ISBN 10 : 9798483716631

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Do you have Ehlers-Danlos Syndrome (EDS)? Do you need an emotional survival guide? Feeling stuck with a debilitating condition that no one truly understands? Are you tired of merely surviving... and want to start thriving? It's one thing to survive and quite another to thrive. Perhaps you struggle daily to stay alive, while the thought of thriving seems like an impossible goal. There can be very little help available for this connective tissue disorder. Many people don't even know the name of this rare genetic condition. And even those closest to sufferers don't fully realize what it means for them. The lack of information and support available (even from medical professionals) can leave you feeling frustrated, alone, and discouraged. This EDS Survival Guide will walk you through 5 KEYS towards acceptance, peace, and taking the right action. If you have pain and problems from living with EDS, this book can offer you a place to reflect and be validated and supported. When you find yourself feeling like no one understands the amount of pain and problems you are experiencing, open this book to explore the 5 Keys of Thriving with EDS. Begin to improve your life with her suggested 7 Day Self-Love Solutions Checklists. Experience how even small changes in habits add up to better health--taking breaths and taking it. . . one day at a time. Learn to change your thinking from going through this to growing through it. Let the principles guide you to live with it and through it--as gracefully as possible. The key is to create new a definition of success. Please visit: SonyaZappone.com for more books, coaching, and free EDS resources!

Odd Girl Out

Author : Laura James
Publisher : Seal Press
File Size : 14,7 Mb
Release Date : 2018-03-27
Genre: Biography & Autobiography
Pages : 256
ISBN 10 : 9781580057790

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A sensory portrait of an autistic mind From childhood, Laura James knew she was different. She struggled to cope in a world that often made no sense to her, as though her brain had its own operating system. It wasn't until she reached her forties that she found out why: Suddenly and surprisingly, she was diagnosed with autism. With a touching and searing honesty, Laura challenges everything we think we know about what it means to be autistic. Married with four children and a successful journalist, Laura examines the ways in which autism has shaped her career, her approach to motherhood, and her closest relationships. Laura's upbeat, witty writing offers new insight into the day-to-day struggles of living with autism, as her extreme attention to sensory detail--a common aspect of her autism--is fascinating to observe through her eyes. As Laura grapples with defining her own identity, she also looks at the unique benefits neurodiversity can bring. Lyrical and lush, Odd Girl Out shows how being different doesn't mean being less, and proves that it is never too late for any of us to find our rightful place in the world.